If you’ve kept up with our blog, then you’ve heard the story of Kenny and Justin Jongsma. Diagnosed 7 years ago with a rare condition called Leber Hereditary Optic Neuropathy, or LHON, the now 28-year-old men lost their central vision and have been learning to adapt ever since.
But through their introduction to eSight Eyewear, the twins found hope. This revolutionary technology enables them to see again. It’s a life-changing device that they’ve already raised thousands of dollars for, but they need help with the final stretch.
Help us help Kenny and Justin reach their final goal. Your donation will literally transform their lives by giving these two brothers access to technology that will grant them mobility and independence.
What is LHON?
Leber Hereditary Optic Neuropathy, better known as LHON, is a rare, inherited condition that results in vision loss. The degenerative effects often begin during a person’s teens or twenties. While there are a few cases of the effects reversing to some extent, most patients who develop LHON experience some degree of permanent vision loss.
What is eSight Eyewear?
eSight Eyewear is a revolutionary piece of technology that uses a high-speed, high-definition camera to emulate natural vision through two pairs of screens, each of which is displayed near one of the user’s eyes.
It helps to fill in the gaps in vision while bringing pristine clarity to what’s in front of the user, as well as what is in their peripheral vision. Due to the highly advanced nature of this technology and the expenses that led to its development, it is currently priced at $9,995 per device.
Yet its capabilities are worth every penny as it grants its users mobile independence in a way they could have only imagined previously.
How Does eSight Help Justin and Kenny?
Justin and Kenny both lost their central vision due to LHON. With eSight, they can redeem that vision, granting them nearly all of the mobility and independence they once knew prior to developing their condition.
What is Dreamscape Foundation’s Connection with the Jongsma Twins?
Dreamscape Foundation recently interviewed Kenny and Justin due to their unique experiences with LHON, the same disease that impacted the life of Dreamscape Founder Joe Sehwani and, in turn, led to the creation of our nonprofit.
When we became aware of their desire to acquire eSight as well as their efforts thus far and their need for more resources, we offered to work with them to help raise the remaining funds for this life-changing technology.
It is the core of our mission to help individuals with low vision or blindness embrace life to the fullest by receiving the technology and resources they need to live a better, more accessible life.